Ehlers Danlos Syndrome

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And an improvement... - This is the most oddly random improvement and I'm not sure how to explain it. After all that doctor mess in Dec. I somehow got it into my head that I should go back on the Depo-Provera shot. I noticed that my gastoparesis got a lot worse around my cy... - 2012/01/18

Good news for a change - I got to see the famous EDS specialist Dr. Brad Tinkle! I had made this appointment several months ago not sure if I'd even be able to make it down. But I did! Luckily it didn't snow that day. Not a trace of snow that day. It was kind of a tiring tri... - 2012/01/18

Rude inconsiderate people at the holidays! - Again I am floored. Apparently there is someone at work who complained I am eating during work hours? I am once again very upset. It is upsetting to deal with health issues and then to have rude, inconsiderate and petty people to deal with on top o... - 2011/12/27

Dealing with it on my own. . . - So after being extremely pissed off at all doctors for about a week I decided I was on my own for now. I Googled gastroparesis and looked up what tips I could. Turns out there are LOTS of other EDSers dealing with this same nasty problem. There ARE s... - 2011/12/16

Not a happy camper - It has taken me a couple weeks to post this because I am extremely unhappy with my doctor and unsure what to do. He did diagnose me with gastroparesis but he said it was "mild." When I asked the nurse on the phone about the other findings of the scop... - 2011/12/16

Gastric emptying study - This test actually sort of sucked more than the upper endoscopy. They made me eat egg beaters laced with some nasty radioactive dye or something. I don't eat eggs anymore, so they felt like a big pile of rocks in my stomach and I felt very queasy... ... - 2011/12/01

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ONLY GOD

"ONLY GOD" is based on our trials & struggles we been through the last 4 years. It tells about what we have learned through them. Only God brought us through these trying times. How I have dealt with Ehlers Danlos Syndrome. All praise, glory & honor goes to God. God bless, Jim N Carolyn Barber

Leon Roomberg's EDS Resources

Includes EDS-experienced physician listing which may help if your doctor needs one to consult with. I am also accepting other physican referrals worldwide.

tori's.eds.site

A personal webpage with a section about Ehlers-Danlos Syndrome.

Sarah's Health Soup

An ongoing update on my health conditions of Arnold Chiari Malformation, Ehlers-Danlos Syndrome and Fibromyalgia

Surviving Chronic Illness: Ehlers-Danlos Syndrome

This site is dedicated to the ongoing journey of emotional and spiritual growth in the face of physical deterioration. Join Susan S. in her day-to-day battles where victories are celebrated and defeats are sorrowfully appreciated for their lessons.

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Ehlers Danlos Syndrome.

Community Stats

· Community Created 03/06/2001
· 9 active site(s)
· 0 visits today
· 15789 total visits

· Uniqueness rank: 71
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