Previewing: Jenny's Story: My Life with Crouzon Syndrome 
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This website has a lot of information about Crouzon Syndrome. It is written by a mother who has Crouzon Syndrome and describes her experiences with growing up with the syndrome and the experiences she is going through with her two children who also have Crouzon Syndrome. The aim of the site is to educate and inspire.
Jenny's Story: My Life with Crouzon Syndrome owned by: crouzonsyndrome
A member of The AmeriFace Circle of Smiles since 06/21/2005.