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Special Needs Children

Manager: wr__tj
The Families with Special Needs Children Forum is open to parents of children with special needs. I also wish to open the forum to individuals to discuss information to help the families who have a child with a disorder/disease in any way. Visitors always welcome!
 

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What does 'stable' actually mean? - 03/19/2013
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Kenny had his comprehensive care appointment today. They check his weight, height, lungs, BP, and nutrition. It all went fairly well. He hasn't lost or gained weight but the doctor noticed that he looked a little sunken in in the cheeks. I noticed it too, but didn't want to sound like a worry wart of a mom. We decided to start back up on his duo cal to see I'd that will add some weight to his body. Their main concern is that his body will start sitting down if he isn't getting enough calories...so were going to bring on as many calories as possible. She asked me I'd I had any questions to which I said no, then she asked me how I was doing. Ok...well...you don't ask someone who has been going through he** these last 6 years, how I'm doing. I bawled my eyes out! It just sort of happened, ewps. I told her the honest truth...I wasn't good. I have horrible flashbacks of when nick was dying and every time Kenny was so sick, I thought he was going to die. I have anxiety over what to,or row will bring and...well...pretty much...I'm a mess. The PTSD and high anxiety that I've been facing has gotten me to the point where I keep asking what more? Waiting for the other shoe to drop. I said I was afraid of losing Kenny and she completely agreed that that was a very valid fear. She told me she love Kenny and is so sorry that were going through all this with him. I've been so strong for so long, that everything has finally caught up to me. The doctor reassured me that as of today,...

What does "stable" actually mean?



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