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Special Needs Children

Manager: wr__tj
The Families with Special Needs Children Forum is open to parents of children with special needs. I also wish to open the forum to individuals to discuss information to help the families who have a child with a disorder/disease in any way. Visitors always welcome!

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What Feeding Tube Awareness Week means to me - 02/10/2013

It's funny how life works. Just last night as I was giving Kenny his cocktail of meds before bed, I remembered that today was the first day of Feeding Tube Awareness Week. Yeah, us mommies of special needs kids cling onto all awareness days, weeks and months because it makes us feel that what we are going through...we aren't going through it alone. Anyhow...I was squeezing his meds through the extention that you hook up to the button on his stomach and I got a face and body full of all that I tried to put in. Here, he had a blockage. Great! There are three things I dread most in the world...puke, changing the frog tank when it gets green and slimy, and having to change a g-tube button. Especially after last summer when I thought I was a seasoned button changer...and as I was putting in the new one, his hole closed we had to go to the hospital to get it reinserted. Let me tell you, this kid is tough because they had to literally stretch his tube opening and really push it in there. So you see how I dread this blockage/changing a tube not for the faint of heart. I grabbed the new tube packet and thought to myself, "I can do this, I can do this". Syringes the balloon saline it's ready to be pulled out. Nah....nope. Couldn't do it. I totally chickened out. I added new saline to the balloon and figured that I was going to work that blockage out. I suctioned and added warm water...for god knows how long but me with my Italian stubbornness, I...

What Feeding Tube Awareness Week means to me

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